Publications & resources

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My Advance Care Plan User Guide is part of the Equity Informed Advance Care Planning (website)

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Too Little Too Late: How we fail vulnerable Canadians as they die and what to do about it (PDF)

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TitleAuthor(s)YearType
“You can’t die here”: an exploration of the barriers to dying-in-place for structurally vulnerable populations in an urban centre in British Columbia, CanadaStajduhar, K. I., Giesbrecht, M., Mollison, A., Whitlock, K., Burek, P., Black, F., Gerke, J., Dosani, N., & Colgan, S. 2024Academic publication
Navigation programs to support community-dwelling individuals with life-limiting illness: determinants of implementation and scale-upScruton, S., Warner, G., Kendell, C., Pfaff, K., Stajduhar, K., Patrick, L., Dujela, C., Fauteux, F., & Urquhart, R. 2024Academic publication
Shifts in homecare nursing practices and their implications for families and clients receiving palliative care at homeStajudhar, K., Sawatzky, K., Funk, L., Cohen, S.R., Bitschy. A., Donald. E., & Votova, K.2023Academic publication
“Now I get what’s important” - Shifting philosophies of hospice society staff and trained volunteers involved in peer-facilitated Advance Care Planning workshops for the publicMróz, L., Soheilipour, S., Siden, E., Carter, R.Z., Kryworuchko, J., Sawatzky, R., Husband, A., Stajduhar, K., Barwich, D., & Hassan, E.2023Academic publication
Naturalization of dying at home for older adults: A critical analysis of Canadian public policy textsScott, E., Funk, L.M., Cherba, M., Krawczyk, M., Rounce, A., Stajduhar, K., & Cohen, S.R. 2023Academic publication
How initial policy responses to COVID-19 contributed to shaping dying at home preferences and care provision: key informant perspectives from CanadaCherba, M., Funk, L., Scott, E., Salman, B., Rounce, A., Krawczyk, M., Mackenzie, C., Stajduhar, K., Dujela, C., & Cohen, S. R. 2023Academic publication
How do navigation programs address the needs of those living in the community with advanced, life-limiting illness? A realist evaluation of programs in CanadaUrquhart, R., Kendell, C., Pfaff, K., Stajduhar, K., Dujela, C., Patrick, L., Scruton, S., Fauteux, F., & Warner, G. 2023Academic publication
Health and healthcare equity within the Canadian cancer care sector: a rapid scoping reviewLambert, L.K., Horrill, T.C., Beck, S.M, Bourgeois, A., Browne, A.J., Cheng, S., Fuchsia Howard, A., Kaur, J., McKenzie, M., Stajduhar, K. & Thorne, S.2023Academic publication
Community perspectives on structural barriers to dying well at home in CanadaChan, W.-S., Funk, L., Krawczyk, M., Cohen, S. R, Cherba, M., Dujela, C., & Stajduhar, K.2023Academic publication
Closing the health equity gap in palliative care: The time for action is nowStajduhar, Kelli & Gott, Merryn2023Academic publication
Where would Canadians prefer to die? Variation by situational severity, support for family obligations and age in a national sampleFunk, L. M., Mackenzie, C. S., Cherba, M., Cohen, S. R., Del Rosario, N., Krawczyk, M., Rounce, A., & Stajduhar, K.2022Academic publication
Perceptions of bereaved family members of nursing care on an inpatient hospice palliative care unitMaze, C., Wilkinson, C., Stajduhar, K., Daudt, H., & Tysick, S.2022Academic publication
"Once you open that door, it’s a floodgate”: Exploring work-related grief among community service workers providing care for structurally vulnerable populations at the end of life through participatory action research Giesbrecht, Melissa; Mollison, Ashley; Whitlock, Kara; & Stajduhar, Kelli2022Academic publication
Exploring the impact of community-based choral participation on cognitive function and well-being for persons with dementia: Evidence from the Voices in Motion project.McDowell, C., Tamburri, N., Smith, A. P., Dujela, C., Sheets, D. J., & McDonald, S. W. S. 2022Academic publication
Equity-oriented healthcare: What it is and why we need it in oncology. [Commentary].Horrill, T., Browne, A. J., & Stajduhar, K. I. 2022Academic publication
Building Palliative Care Capacity for Generalist Providers in the Community: Results From the CAPACITI Pilot Education ProgramSeow H, Bainbridge D, Stajduhar K, Marshall D, Howard M, Brouwers M, Barwich D, Burge F, & Kelley ML2022Academic publication
“We are to be like machines…fill the bed before it gets cold”: Exploring the emotional geographies of healthcare providers caring for dying residents in long-term care facilitiesGiesbrecht, M., Stajduhar, K., Cloutier D., Dujela, C.2021Academic publication
The Carer Support Needs Assessment Tool (CSNAT) overviewEwing, G. & Grande, G.2021Educational tool or resource
Research brief: Inner-city workers and EOL supportStajduhar et al.2021Research brief
Prolonged grief and bereavement supports within a caregiver population who transition through a palliative care program in British Columbia, Canada. Wu, E. X., Collins, A., Briggs, S., Stajduhar, K. I., Kalsi, A., & Hilliard, N. 2021Academic publication
Knowledge translation resources to support the use of quality of life assessment tools for the care of older adults living at home and their family caregivers. Schick-Makaroff, K., Sawatzky, R., Cuthbertson, L., Öhlén, J., Beemer, A., Duquette, D., Karimi-Dehkordi, M., Stajduhar, K. I., Suryaprakash, N., Terblanche, L., Wolff, A., & Cohen, S. R.2021Academic publication
Feasibility of routine quality of life measurement for people living with dementia in long-term care.Hoben, M., Banerjee, S., Beeber, A. S., Chamberlain, S. A., Hughes, L., O’Rourke, H. M., Stajduhar, K., Shrestha, S., Devkota, R., Lam, J., Simons, I., Dymchuk, E., Corbett, K., & Estabrooks, C.2021Academic publication
‘Bare-bones’ to ‘silver linings’: lessons on integrating a palliative approach to care in long-term care in Western CanadaCloutier D., Stajduhar K.I., Roberts D., Dujela C. & Roland K.2021Academic publication
A co-development process to advance methods for the use of PROMs and PREMs with people who are homeless and experience chronic illnessDonald, E., Whitlock, K., Dansereau, T., Sands, D. J., Small, D., & Stajduhar, K. I.2021Academic publication
Team-based integrated knowledge translation for enhancing quality of life in long-term care settings: A multi-method, multi-sectoral research designKeefe, J., Hande, M-J., Aubrecht, K., Daly, T., Cloutier, D., Taylor, D., Hoben, M., Stajduhar, K., Cook, H., Bourgeault, I.L. MacDonald, L., & Estabrooks, C.A.2020Academic publication
Provocations on privilege in palliative are: Are we meeting our core mandate?Stajduhar, K.2020Academic publication
Infographic: COVID-19: Equity-Informed Palliative Care & Social DisadvantageEquity in Palliative Approaches to Care Collaborative2020Educational tool or resource
"Everybody in this community is at risk of dying": An ethnographic exploration on the potential of integrating a palliative approach to care among workers in inner-city settingsStajduhar, K.I., Giesbrecht, M., Mollison, A., & d’Archangelo, M. 2020Academic publication
Equity-Informed Advance Care Planning (ACP) Tools​Equity in Palliative Approaches to Care Collaborative2020Educational tool or resource
Caregiving at the margins: An ethnographic exploration of family caregivers experiences providing care for structurally vulnerable populations at the end-of-lifeStajduhar, K.I., **Giesbrecht, M., Mollison, A., **Dosani, N., & McNeil, R. 2020Academic publication
Self-Perceived Competence of Nurses and Care Aides Providing a Palliative Approach in Home, Hospital, and Residential Care Settings: A Cross-Sectional SurveySawatzky, R., Roberts, D., Russell, L., Bitschy, A., Ho, S., Desbiens, J-F., Chan, E.,Tayler, C., & Stajduhar, K.2019Academic publication
"Just too busy living in the moment and surviving”: Barriers to accessing health care for structurally vulnerable populations at end-of-lifeStajduhar, K., Mollison, A., Giesbrecht, M., McNeil, R., Pauly, B., Reimer-Kirkham, S., Dosani, N., Wallace, B., Showler, G., Meagher, C., Kvakic, K., Gleave, D., Teal, T., Rose, C., Showler, C., & Rounds, K.2019Academic publication
Applying the concept of structural empowerment to interactions between families and home care nursesFunk, L.M., Stajduhar, K., Giesbrecht, M., Cloutier, D., Williams, A., & Wolse, F.2019Academic publication
A scoping review of palliative care for persons with severe persistent mental illnessDonald, E., & Stajduhar, K. 2019Academic publication
What are healthcare providers’ understandings and experiences of compassion? The healthcare compassion model: A grounded theory study of healthcare providers in CanadaSinclair, S., Hack, T.F., Raffin-Bouchal, S., McClement, S., Stajduhar, K., Singh, P., Hagen, N.A., Sinnarajah, A., & Chochinov, H.M.2018Academic publication
Too Little, Too Late: How we fail vulnerable Canadians as they die and what to do about itStajduhar, Kelli; Mollison, Ashley; and the Equitable Access to Care Team2018Report
Micro-meso-macro practice tensions in using patient-reported outcome and experience measures in hospital palliative careKrawczyk, M., Sawatzky, R., Schick-Makaroff, K., Stajduhar, K., Ӧhlen, J., Reimer-Kirkham, S., Laforest, E.M., & Cohen, S.R.2018Academic publication
Hospitals, clinics, and palliative care units: Place-based experiences of formal healthcare settings by people experiencing structural vulnerability at the end-of-lifeGiesbrecht, M., Stajduhar, K., Mollison, A., Pauly, B., Reimer-Kirkham, S., McNeil, R., Wallace, B., Dosani, N., & Rose, C. 2018Academic publication
Discourses Reproducing Gender Inequities in Hospice Palliative Home CareSutherland, N., Ward-Griffin, C., McWilliam, C., & Stajduhar, K. 2018Academic publication
Design and introduction of a quality of life assessment and practice support system: Perspectives from palliative care settingsSawatzky, R., Laforest, E., Schick Makaroff, K., Stajduhar, K., Reimer-Kirkham, S., Krawczyk, M., Öhlén, J., McLeod, B., Hilliard, N., Tayler, C., & Cohen, S.R. 2018Academic publication
Book Chapter: Supporting Families and Family Caregivers in Palliative CareStajduhar, K.I., & Dionne-Odom, J.N.2018Academic publication
Structural impact on gendered expectations and exemptions for family caregivers in hospice palliative home careSutherland, N., Ward-Griffin, C., McWilliam, C., & Stajduhar, K. 2017Academic publication
Embedding a palliative approach in nursing care delivery: An integrated knowledge synthesisSawatzky, R., Porterfield, P., Roberts, D., Lee, J., Liang, L., Reimer-Kirkham, S., Pesut, B., Schalkwyk, T. Stajduhar, K., Tayler, C., Baumbusch, J., & Thorne, S.2017Academic publication
Editorial: When cancer hits the streetsStajduhar, K.I., Mollison, A., Gleave, D., & Hwant, S.W.2017Academic publication
Bereaved family members' perceptions of the quality of end-of-life care across four types of inpatient care settingsStajduhar K.I., Sawatzky, R., Cohen, R., Heyland, D., Allan, D., Bidgood, D., Norgrove, L., & Gadermann, A.2017Academic publication
Rebuilding the roots of patient-centred care. [Peer commentary on “Bringing nursing back to the future through people powered care” by Sharkey and LeFebre].Thorne, S., & Stajduhar, K.2017Academic publication
Gendered Processes in Hospice Palliative Home Care for Seniors With Cancer and Their Family CaregiversSutherland, N., Ward-Griffin, C., McWilliam, C., & Stajduhar, K.2016Academic publication
Death is a social justice issue: Perspectives on equity-informed palliative careReimer-Kirkham, S., Stajduhar, K., Pauly, B., Giesbrecht, M., Mollison, A., McNeil, R., & Wallace, B.2016Report
Conceptual foundations of a palliative approach: a knowledge synthesisSawatzky, R., Porterfield, P., Lee, J., Dixon, D., Lounsbury, K., Pesut, B., Roberts, D., Tayler, C., Voth, J., & Stajduhar, K. 2016Academic publication
‘Close to’ a palliative approach: nurses' and care aides' descriptions of caring for people with advancing chronic life‐limiting conditionsReimer-Kirkham, S., Sawatzky, R., Roberts, D., Cochrane, M., & Stajduhar, K.2016Academic publication
What family caregivers learn when providing care at the end of life: a qualitative secondary analysis of multiple datasetsFunk, L., Stajduhar, K.I., & Outcalt, L.2015Academic publication
Translational Scholarship and a Palliative Approach: Enlisting the Knowledge-As-Action FrameworkReimer-Kirkham, S., Hartrick Doane, G., Antifeau, E., Pesut, B., Porterfield, P., Roberts, D., Stajduhar, K., & Wikjord, N. 2015Academic publication
The Impact of the Carer Support Needs Assessment Tool (CSNAT) in Community Palliative Care Using a Stepped Wedge Cluster TrialAoun, S. M., Grande, G., Howtling, D., Deas, K., Toye, C., Troeung, L., Stajduhar, K., & Ewing, G.2015Academic publication
Supporting family caregivers to identify their own needs in end-of-life care: Qualitative findings from a stepped wedge cluster trialAoun, S., Deas, K., Toye, C., Ewig, G., Grande, G., & Stajduhar, K.I.2015Academic publication
(Re)theorizing Integrated Knowledge Translation: A Heuristic for Knowledge-As-ActionHartrick Doane, G., Reimier-Kirkham, S., Antifeau, E., & Stajduhar, K.2015Academic publication
Registered nurses' involvement in advance care planning: an integrative reviewRietze, L., & Stajduhar, K.2015Academic publication
Palliative approach education for rural nurses and health-care workers: a mixed-method studyPesut, B., Potter, G., Stajduhar, K.I., Sawatzky, R., McLeod, B., & Drabot, K.2015Academic publication
Identifying socio-environmental factors that facilitate resilience among Canadian palliative family caregivers: a qualitative case studyGiesbrecht, M., Wolse, F., Crooks, V.A., & Stajduhar, K.2015Academic publication
Findings on Advance Care Plans among Cognitively Impaired Older AdultsJeznach, A., Tuokko, H., Garcia-Barrera, M., & Stajduhar, K.2015Academic publication
Enabling a family caregiver-led assessment of support needs in home-based palliative care: Potential translation into practiceAoun, S., Toye, C., Deas, K., Howting, D., Ewing, G., Grande, G., & Stajduhar, K.2015Academic publication
Cultural influences on palliative family caregiving: service recommendations specific to the Vietnamese in CanadaWilliams, A.M., Donovan, R., Stajduhar, K., & Spitzer, D.2015Academic publication
Contrasting stories of life-threatening illness: a narrative inquiryShields, L., Molzahn, A., Bruce, A., Schick Makaroff, K., Stadjuhar, K.I., Beuthin, R., & Shermak, S. 2015Academic publication
Client, caregiver, and provider perspectives of safety in palliative home care: a mixed method designLang, A., Toon, L., Cohen, S.R., Stajduhar, K.I., Griffin, M., Fleiszer, A.R., Easty, T., & Williams, A.2015Academic publication
Examining the language-place-healthcare intersection in the context of Canadian homecare nursingGiesbrecht, M.D., Crooks, V.A., & Stajduhar, K.I.2014Academic publication