Publications & resources

A graphic of six interlocking stages in a flower-like arrangement. They read: CSNAT Approach Stage 1: Introduction of CSNAT, Stage 2: Carer consideration of needs, Stage 3: Assessment conversation, Stage 4: Shared action plan, Stage 5: Shared review. In the middle it reads: "14 domains: Enabling the carer to care :7) and "direct support for the carer" (7)"
The CSNAT approach.

Featured resource: Canadian CSNAT (Carer Support Needs Assessment Tool) Approach Learning Modules

Family caregivers play a key role in the support and delivery of care to those who are dying at home. While many family members take on these caregiving responsibilities out of a strong sense of family commitment to care for their own, it is not without consequences. Our Canadian team of researchers have been working with colleagues in the United Kingdom (UK) and Australia to develop mechanisms to help the health care system and its workers better respond to the support needs of family caregivers. Through the leadership of our UK colleagues, came the development of the Carer Support Needs Assessment Tool (CSNAT). The CSNAT can be used as an intervention in home and hospital-based palliative care. The CSNAT is an approach, used by providers, to facilitate and focus conversations with family caregivers to reveal and address their own support needs.

Through collaboration and joint effort with the UK CSNAT team we have finalized a Canadian revision of the CSNAT Learning Modules. These are educational tools to help equip care providers with The CSNAT Approach.

Would you like to learn a little more about the CSNAT Approach? Read this excerpt from the Learning Unit 1 Appendices, which provides a general overview. For more information, or if you would like to register for this free training, visit the National Institute for Health Research website.

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Where would Canadians prefer to die? Variation by situational severity, support for family obligations and age in a national sampleFunk, L. M., Mackenzie, C. S., Cherba, M., Cohen, S. R., Del Rosario, N., Krawczyk, M., Rounce, A., & Stajduhar, K.2022Academic publication
Perceptions of bereaved family members of nursing care on an inpatient hospice palliative care unitMaze, C., Wilkinson, C., Stajduhar, K., Daudt, H., & Tysick, S.2022Academic publication
Exploring the impact of community-based choral participation on cognitive function and well-being for persons with dementia: Evidence from the Voices in Motion project.McDowell, C., Tamburri, N., Smith, A. P., Dujela, C., Sheets, D. J., & McDonald, S. W. S. 2022Academic publication
Equity-oriented healthcare: What it is and why we need it in oncology. [Commentary].Horrill, T., Browne, A. J., & Stajduhar, K. I. 2022Academic publication
Building Palliative Care Capacity for Generalist Providers in the Community: Results From the CAPACITI Pilot Education ProgramSeow H, Bainbridge D, Stajduhar K, Marshall D, Howard M, Brouwers M, Barwich D, Burge F, & Kelley ML2022Academic publication
“We are to be like machines…fill the bed before it gets cold”: Exploring the emotional geographies of healthcare providers caring for dying residents in long-term care facilitiesGiesbrecht, M., Stajduhar, K., Cloutier D., Dujela, C.2021Academic publication
The Carer Support Needs Assessment Tool (CSNAT) overviewEwing, G. & Grande, G.2021Educational tool or resource
Research brief: Inner-city workers and EOL supportStajduhar et al.2021Research brief
Prolonged grief and bereavement supports within a caregiver population who transition through a palliative care program in British Columbia, Canada. Wu, E. X., Collins, A., Briggs, S., Stajduhar, K. I., Kalsi, A., & Hilliard, N. 2021Academic publication
Knowledge translation resources to support the use of quality of life assessment tools for the care of older adults living at home and their family caregivers. Schick-Makaroff, K., Sawatzky, R., Cuthbertson, L., Öhlén, J., Beemer, A., Duquette, D., Karimi-Dehkordi, M., Stajduhar, K. I., Suryaprakash, N., Terblanche, L., Wolff, A., & Cohen, S. R.2021Academic publication
Feasibility of routine quality of life measurement for people living with dementia in long-term care.Hoben, M., Banerjee, S., Beeber, A. S., Chamberlain, S. A., Hughes, L., O’Rourke, H. M., Stajduhar, K., Shrestha, S., Devkota, R., Lam, J., Simons, I., Dymchuk, E., Corbett, K., & Estabrooks, C.2021Academic publication
‘Bare-bones’ to ‘silver linings’: lessons on integrating a palliative approach to care in long-term care in Western CanadaCloutier D., Stajduhar K.I., Roberts D., Dujela C. & Roland K.2021Academic publication
A co-development process to advance methods for the use of PROMs and PREMs with people who are homeless and experience chronic illnessDonald, E., Whitlock, K., Dansereau, T., Sands, D. J., Small, D., & Stajduhar, K. I.2021Academic publication
Team-based integrated knowledge translation for enhancing quality of life in long-term care settings: A multi-method, multi-sectoral research designKeefe, J., Hande, M-J., Aubrecht, K., Daly, T., Cloutier, D., Taylor, D., Hoben, M., Stajduhar, K., Cook, H., Bourgeault, I.L. MacDonald, L., & Estabrooks, C.A.2020Academic publication
Provocations on privilege in palliative are: Are we meeting our core mandate?Stajduhar, K.2020Academic publication
Infographic: COVID-19: Equity-Informed Palliative Care & Social DisadvantageEquity in Palliative Approaches to Care Collaborative2020Educational tool or resource
"Everybody in this community is at risk of dying": An ethnographic exploration on the potential of integrating a palliative approach to care among workers in inner-city settingsStajduhar, K.I., Giesbrecht, M., Mollison, A., & d’Archangelo, M. 2020Academic publication
Equity-Informed Advance Care Planning (ACP) Tools​Equity in Palliative Approaches to Care Collaborative2020Educational tool or resource
Caregiving at the margins: An ethnographic exploration of family caregivers experiences providing care for structurally vulnerable populations at the end-of-lifeStajduhar, K.I., **Giesbrecht, M., Mollison, A., **Dosani, N., & McNeil, R. 2020Academic publication
Self-Perceived Competence of Nurses and Care Aides Providing a Palliative Approach in Home, Hospital, and Residential Care Settings: A Cross-Sectional SurveySawatzky, R., Roberts, D., Russell, L., Bitschy, A., Ho, S., Desbiens, J-F., Chan, E.,Tayler, C., & Stajduhar, K.2019Academic publication
"Just too busy living in the moment and surviving”: Barriers to accessing health care for structurally vulnerable populations at end-of-lifeStajduhar, K., Mollison, A., Giesbrecht, M., McNeil, R., Pauly, B., Reimer-Kirkham, S., Dosani, N., Wallace, B., Showler, G., Meagher, C., Kvakic, K., Gleave, D., Teal, T., Rose, C., Showler, C., & Rounds, K.2019Academic publication
Applying the concept of structural empowerment to interactions between families and home care nursesFunk, L.M., Stajduhar, K., Giesbrecht, M., Cloutier, D., Williams, A., & Wolse, F.2019Academic publication
A scoping review of palliative care for persons with severe persistent mental illnessDonald, E., & Stajduhar, K. 2019Academic publication
What are healthcare providers’ understandings and experiences of compassion? The healthcare compassion model: A grounded theory study of healthcare providers in CanadaSinclair, S., Hack, T.F., Raffin-Bouchal, S., McClement, S., Stajduhar, K., Singh, P., Hagen, N.A., Sinnarajah, A., & Chochinov, H.M.2018Academic publication
Too Little, Too Late: How we fail vulnerable Canadians as they die and what to do about itStajduhar, Kelli; Mollison, Ashley; and the Equitable Access to Care Team2018Report
Micro-meso-macro practice tensions in using patient-reported outcome and experience measures in hospital palliative careKrawczyk, M., Sawatzky, R., Schick-Makaroff, K., Stajduhar, K., Ӧhlen, J., Reimer-Kirkham, S., Laforest, E.M., & Cohen, S.R.2018Academic publication
Hospitals, clinics, and palliative care units: Place-based experiences of formal healthcare settings by people experiencing structural vulnerability at the end-of-lifeGiesbrecht, M., Stajduhar, K., Mollison, A., Pauly, B., Reimer-Kirkham, S., McNeil, R., Wallace, B., Dosani, N., & Rose, C. 2018Academic publication
Discourses Reproducing Gender Inequities in Hospice Palliative Home CareSutherland, N., Ward-Griffin, C., McWilliam, C., & Stajduhar, K. 2018Academic publication
Design and introduction of a quality of life assessment and practice support system: Perspectives from palliative care settingsSawatzky, R., Laforest, E., Schick Makaroff, K., Stajduhar, K., Reimer-Kirkham, S., Krawczyk, M., Öhlén, J., McLeod, B., Hilliard, N., Tayler, C., & Cohen, S.R. 2018Academic publication
Book Chapter: Supporting Families and Family Caregivers in Palliative CareStajduhar, K.I., & Dionne-Odom, J.N.2018Academic publication
Structural impact on gendered expectations and exemptions for family caregivers in hospice palliative home careSutherland, N., Ward-Griffin, C., McWilliam, C., & Stajduhar, K. 2017Academic publication
Embedding a palliative approach in nursing care delivery: An integrated knowledge synthesisSawatzky, R., Porterfield, P., Roberts, D., Lee, J., Liang, L., Reimer-Kirkham, S., Pesut, B., Schalkwyk, T. Stajduhar, K., Tayler, C., Baumbusch, J., & Thorne, S.2017Academic publication
Editorial: When cancer hits the streetsStajduhar, K.I., Mollison, A., Gleave, D., & Hwant, S.W.2017Academic publication
Bereaved family members' perceptions of the quality of end-of-life care across four types of inpatient care settingsStajduhar K.I., Sawatzky, R., Cohen, R., Heyland, D., Allan, D., Bidgood, D., Norgrove, L., & Gadermann, A.2017Academic publication
Rebuilding the roots of patient-centred care. [Peer commentary on “Bringing nursing back to the future through people powered care” by Sharkey and LeFebre].Thorne, S., & Stajduhar, K.2017Academic publication
Gendered Processes in Hospice Palliative Home Care for Seniors With Cancer and Their Family CaregiversSutherland, N., Ward-Griffin, C., McWilliam, C., & Stajduhar, K.2016Academic publication
Death is a social justice issue: Perspectives on equity-informed palliative careReimer-Kirkham, S., Stajduhar, K., Pauly, B., Giesbrecht, M., Mollison, A., McNeil, R., & Wallace, B.2016Report
Conceptual foundations of a palliative approach: a knowledge synthesisSawatzky, R., Porterfield, P., Lee, J., Dixon, D., Lounsbury, K., Pesut, B., Roberts, D., Tayler, C., Voth, J., & Stajduhar, K. 2016Academic publication
‘Close to’ a palliative approach: nurses' and care aides' descriptions of caring for people with advancing chronic life‐limiting conditionsReimer-Kirkham, S., Sawatzky, R., Roberts, D., Cochrane, M., & Stajduhar, K.2016Academic publication
What family caregivers learn when providing care at the end of life: a qualitative secondary analysis of multiple datasetsFunk, L., Stajduhar, K.I., & Outcalt, L.2015Academic publication
Translational Scholarship and a Palliative Approach: Enlisting the Knowledge-As-Action FrameworkReimer-Kirkham, S., Hartrick Doane, G., Antifeau, E., Pesut, B., Porterfield, P., Roberts, D., Stajduhar, K., & Wikjord, N. 2015Academic publication
The Impact of the Carer Support Needs Assessment Tool (CSNAT) in Community Palliative Care Using a Stepped Wedge Cluster TrialAoun, S. M., Grande, G., Howtling, D., Deas, K., Toye, C., Troeung, L., Stajduhar, K., & Ewing, G.2015Academic publication
Supporting family caregivers to identify their own needs in end-of-life care: Qualitative findings from a stepped wedge cluster trialAoun, S., Deas, K., Toye, C., Ewig, G., Grande, G., & Stajduhar, K.I.2015Academic publication
(Re)theorizing Integrated Knowledge Translation: A Heuristic for Knowledge-As-ActionHartrick Doane, G., Reimier-Kirkham, S., Antifeau, E., & Stajduhar, K.2015Academic publication
Registered nurses' involvement in advance care planning: an integrative reviewRietze, L., & Stajduhar, K.2015Academic publication
Palliative approach education for rural nurses and health-care workers: a mixed-method studyPesut, B., Potter, G., Stajduhar, K.I., Sawatzky, R., McLeod, B., & Drabot, K.2015Academic publication
Identifying socio-environmental factors that facilitate resilience among Canadian palliative family caregivers: a qualitative case studyGiesbrecht, M., Wolse, F., Crooks, V.A., & Stajduhar, K.2015Academic publication
Findings on Advance Care Plans among Cognitively Impaired Older AdultsJeznach, A., Tuokko, H., Garcia-Barrera, M., & Stajduhar, K.2015Academic publication
Enabling a family caregiver-led assessment of support needs in home-based palliative care: Potential translation into practiceAoun, S., Toye, C., Deas, K., Howting, D., Ewing, G., Grande, G., & Stajduhar, K.2015Academic publication
Cultural influences on palliative family caregiving: service recommendations specific to the Vietnamese in CanadaWilliams, A.M., Donovan, R., Stajduhar, K., & Spitzer, D.2015Academic publication
Contrasting stories of life-threatening illness: a narrative inquiryShields, L., Molzahn, A., Bruce, A., Schick Makaroff, K., Stadjuhar, K.I., Beuthin, R., & Shermak, S. 2015Academic publication
Client, caregiver, and provider perspectives of safety in palliative home care: a mixed method designLang, A., Toon, L., Cohen, S.R., Stajduhar, K.I., Griffin, M., Fleiszer, A.R., Easty, T., & Williams, A.2015Academic publication
Examining the language-place-healthcare intersection in the context of Canadian homecare nursingGiesbrecht, M.D., Crooks, V.A., & Stajduhar, K.I.2014Academic publication