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Re-stor(y)ing Research Project

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Symbols of living in-between: Re-stor(y)ing life within life-threatening illness

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Re-stor(y)ing research project: stories of living with illness

Advances in science and healthcare have allowed people with life-threatening illnesses to live longer and healthier lives. But outcomes of treatment are uncertain and the experience of living in-between a promise of prolonged life, and the possibility of illness reoccurring and progressing, is often misunderstood. Thirty-two people diagnosed with life-threatening illness (HIV/AIDS, cancer, chronic kidney disease) participated in a study conducted by a team of nurse researchers from UVic and the University of Alberta, over a period of three years.

The "Re-stor(y)ing" research study

The team was led by Dr. Laurene Sheilds and included Drs. Anita Molzahn, Anne Bruce and Kelli Stajduhar with then-doctoral students Kara Schick Makaroff, Rosanne Beuthin and Sheryl Shermack. During the interviews participants were asked to identify a symbol that represented their illness experience. They shared stories to explain why they selected a particular symbol and described what the symbol meant for them as an individual living with a serious illness.

Read stories of:

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